Monday, 9 May 2011
Tuesday, 29 March 2011
Friday, 13 August 2010
Sunday, 25 July 2010
LLTGL updated their blog with a different transplant related story everyday, showing the many ways that transplants touch lives. Rachy and I would like to say a big thank you to anyone who raised awareness or did something for transplant week, you're stars!
If you missed out but still want to help, it's not too late!!!
- Send a tweet asking people to sign the organ donor register and include the link to sign up http://tinyurl.com/ldkrcz
- Tell all your friends on facebook why it's so important to sign up!
- Talk to people in you're workplace about signing up. Put leaflets or a poster in your staffroom to get them interested. You could even set up computers to the organ donation register so they can sign up then and there.
- Do you write a blog? Why not write a post about organ donation and the difference it can make.
- If you're feeling adventurous take up a challenge event/ make a donation/or have a fundraiser for LLTGL so they can continue their lifesaving work promoting organ donation and supporting transplant patients. Check out their website for more fabulous ideas for getting involved!
It couldn't be simpler to get involved and could literally be the difference between life and death for people like me. Leave us a comment and let us know what you've been up to!
Sunday, 4 July 2010
Myth: If I agree to donate my organs, hospital staff won't work as hard to save my life.
Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency. The doctor in charge of your care has nothing to do with transplantation.
Myth: Organ donation is against my Religion.
Fact: All the major religions of the UK support the principles of organ donation and transplantation. However, within each religion there are different schools of thought, which means that views may differ. All the major religions accept that organ donation is an individual choice. NHSBT has worked closely with religious leaders of Buddhism, Christianity, Hinduism, Islam, Judaism and Sikhism to research and produce a series of leaflets explaining organ donation and religious viewpoints and principles. Which are available here.
Myth: I'm too old to be a donor.
Fact: The oldest donor to date was 104yrs old. In the case of cornea and some other tissue, age does not matter. For other organs it is the person's physical condition, not age, which is the deciding factor. Specialist healthcare professionals decide in each case which organs and tissue are suitable. Organs and tissue from people in their 70s and 80s are transplanted successfully.
Myth: I have a medical condition and I'm too ill to be a donor "people wouldn't want my organs".
Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Only medical professionals at the time of death can determine whether organs are suitable for transplantation.
Myth: Carrying a donor card is all you need to do to be a donor.
Fact: Cards can and do get lost or damaged and you may not be carrying yours when you are taken to hospital. Adding your name to the register is a more permanent way of expressing your wishes. You can still carry a card if you wish to. And most importantly don't forget to tell your relatives and loved ones what your wishes are.
Monday, 31 May 2010
However I do have some fantastic news about my fellow advocate Rachy that I had to share. On Friday she was allowed to leave hospital and start out on her brand new life, isn't that amazing?! From arriving at the hospital to have her transplant, breathless, on oxygen, in a wheelchair, and nearing the end of her life, just a few months later she has been transformed to someone who walked out of the hospital, tube and wheelchair free, with endless possiblities ahead of her. That is the miracle of transplant, I can't say it any clearer than that.
I'm sure Rachy will be along to update you all herself very soon but I wanted to let you all know how well she has done and send big hugs and kisses from all of us here.
Wednesday, 14 April 2010
It's been a while since I updated once again, life has been a bit hectic lately and I've been getting very tired so blogging has unfortunately suffered. I will definately post about all thats been going on since last time very soon, but today I want to discuss the recent negative stories about organ donation in the press.
On Sunday morning I heard the story on the news and my heart immediately sank. Some donors (those who signed up via their driving licence application) had their wishes recorded wrongly onto the system. Although they had given their consent for their organs to be used after their death, the information about which organs could be used had been wrongly listed. Obviously my heart goes out to those donor families that have been affected by this news. It must be very traumatic for them to hear and to inevitably relive the experience.
In my position it is always so gutting to hear of a negative story that may adversely effect people deciding to donate their organs. There have been conflicting reports in the papers and that doesn't help either, it is completely understandable that readers take it at face value and think "maybe donation isn't for me". Unfortunately what the papers in the most part dont show you is the thousands of people like me whose lives depend on organ donation, those who are waiting and dying everyday. It doesn't tell the public that 3 people waiting for an organ die each day because of the pure lack of donors. It doesn't tell you that you are more likely to need an organ than to donate one.
I want people to have both sides of the story in front of them and to make an informed decision. That is why when GMTV phoned and asked me to appear on Mondays show (yes, 2nd time in under a month!) I jumped at the chance despite feeling pretty rough. It gives the public another view, another side to the story. You can view my interview above.
The NHSBT service are contacting anyone effected by this error to ensure that the information they have is correct and complies with patient wishes. The mistake was made over 10 years ago and the new systems in place are working to prevent this ever happening again. See the link here for LLTGL's post on the basic facts of the story.
Please pass this post on to as many people as you can to give them an insight into what life is like being dependant on someone else to allow you to live. I really hope that the damage caused by this story will be limited and that people will still be willing to donate the gift of life that so many people are hoping for.